Should Research-grade Genomic Data be Returned to Study Participants?

Call for a change
22
Jan

Should Research-grade Genomic Data be Returned to Patients?

While literature in clinical practice and patient rights suggests that study participants should have access to their genomic data, IRBs do not currently include mechanisms to facilitate effective and ethical collection of patient data across institutions and dissemination back to patients. Professor Kuhn and colleagues discuss the rights of patients to access their genomic data and call for change in the status quo.

Read more in this perspective published in IOP Convergent Science Physical Oncology

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